About Neuro–Hope
Neuro-Hope is the clinical services arm of the Institute for Cognitive Prosthetics (ICP) and focuses on the needs of brain injury survivors who have had outpatient cognitive rehabilitation and continue to have deficits in their cognitive functioning that affect their lives. ICP is a research & development organization founded by Dr. Elliot Cole, a computer scientist internationally recognized for his expertise in designing personal computing technology for treating cognitive disabilities.
Enabling rehabilitation with technology
Computers are broad-purpose cognitive machines, but people are rarely aware of the ways personal computing provides cognitive support in our daily lives. We need to remember less; we need to plan less, and we can complete tasks in less time. When you think about it, the results are profound: we can do the same work in less time, enjoy more free time as a result, and we no longer worry about getting lost thanks to GPS on our smartphones.
For people who have developed cognitive disabilities, personal computing devices can be a godsend. Unfortunately, these technologies continue to be an underutilized resource for brain injury cognitive rehabilitation programs.
Neuro-Hope uses an approach that adopts and adapts personal computing and augments it with specialists who treat individuals with cognitive disabilities from different types of brain injury, enabling our clients to rapidly resume activities important to them, including those that needed caregiver support.
Collaborative Rehabilitation Therapy
We call this approach “Collaborative Rehabilitation Therapy.” In addition to adapting technologies for the client’s needs, we also take a highly collaborative and patient-centered approach to everyone we treat. Therapy goals are defined by the client’s priorities, and we start with each person’s strengths, not their weaknesses, creating a positive experience that engages and motivates the client.
Another unique aspect of Collaborative Rehabilitation Therapy is the fact that the best locations for therapy are the places where our clients lead their lives, such as their homes, schools, and workplaces. These are the natural environments in which the client spends considerable time, and in which they routinely use elements of their Personal Technology Networks.
For people with cognitive disabilities, this technology helps them take part in an array of activities that would require dependence on caregiver support at a time and place dependent on caregivers. For our clinicians, seeing their patients in their natural environments supplies a wealth of information not accessible in the clinic. For more complex cases, this enables the therapist to develop and implement more complex interventions that have a better fit with the patient functioning in their natural environment.
Cognitive rehabilitation does not benefit from hands-on therapy in the way other types of rehabilitation do. Travelling to the facility drains the patient of both cognitive and physical stamina, reducing the patient’s ability to gain from therapy. More is lost on the way home because of the complex process of integrating newly gained information into long-term memory. For example, outpatients are not able to take naps after therapy that promote cognitive hygiene. In the individual’s natural environment, they are better able to understand therapy interventions and better able to retain therm. They are also able to take a nap which aids in integrating what was just presented with what goes into long-term memory. Both therapist and client gain from delivering therapy to the client’s natural environments.
Adapting the therapeutic approach to incorporate today’s technologies
Advances in personal technology are relatively rapid. Devices are being replaced every few years and software updates continually add new features which add to their usefulness. Dr. Cole has long been an advocate for the use of computer technology in addressing cognitive disabilities in brain injury survivors, whether from stroke or other anoxic injury, or traumatic injury, or as the result of other medical intervention. Whatever the underlying cause of the injury, computer technology can address the needs of many brain injury survivors who still have cognitive disabilities following conventional cognitive rehabilitation.
Today’s brain injury survivor has multiple technology devices, uses many apps, and connects online to a broad array of services and organizations that provide active support. We call this the individual’s “Personal Technology Network.” Technology is now considered a necessity and supports many cognitive aspects of our daily activities. However, cognitive disabilities may impair more than a person’s natural cognitive functioning. Their willingness and ability to use their Personal Technology Network may also be affected.
While the WHO noted in 2001 that dependence on electronic technology for daily support was evidence of cognitive disability, now the inability to use electronic technology can be taken as evidence – or at least suspicion – of cognitive disability.
Sophisticated and specialized quaternary care
Most Neuro-Hope clients come after completing therapy at large regional or national facilities, which provide “tertiary-level” care, e.g., specialized care in a hospital setting. Neuro-Hope is considered a quaternary care provider, providing advanced levels of specialized care via our multidisciplinary staff. provide.
Neuro-Hope continues to be at the forefront of using personal technology to both reduce the impact of cognitive disability on daily life and to enable people with cognitive disabilities to be able to behave just like those people without cognitive disabilities.
About Elliot Cole, PhD
Dr. Elliot Cole is a computer scientist known internationally for his work addressing the needs of brain injury survivors with enduring cognitive disabilities that persist even after intensive cognitive rehabilitation.
As an academic researcher in the early days of personal computing, Dr. Cole recognized that computer science had the potential to increase the cognitive performance of people with cognitive disabilities resulting from acquired brain injuries. He founded the Institute for Cognitive Prosthetics (ICP) as a research and development organization to develop technology and therapy techniques to further the recovery of these individuals, and later founded Neuro-Hope as the of clinical services arm of the Institute.
The approach Dr. Cole developed would become a roadmap for increasing cognitive performance that increased a brain injury survivor’s independence, reducing the degree of caregiver support needed and enabling them to lead more satisfying and fulfilling lives. Adapting personal technology and productivity software tools to the needs of brain injury survivors with cognitive disabilities, Dr. Cole’s approach focuses on people who continue to have cognitive disabilities after completing cognitive rehabilitation, and for whom medical science anticipated no further cognitive recovery.
From the beginning, Dr. Cole’s skills as a researcher enabled him to have immediate success in working with brain injury survivors, due in equal parts to involving patients in the design of the software that would be part of their therapy and focusing therapy on an activity related to the patient's priorities.
Employing technology as a cognitive prosthesis
The challenge in working with people with cognitive disabilities from brain injury is that these individuals have unique combinations of abilities and deficits, described in the computer science literature as a “Universe of One.” Another complication many within this user population exhibit is the need for caregiver intervention to perform certain tasks in their everyday lives.
Dr. Cole addressed these challenges from the very beginning, making changes to the user interface on personal computers in the early 1990’s when people began using productivity software, such as word processors, spreadsheets, calendars, presentation packages and email. Recognizing that these software packages had features that brain injury survivors could use to reduce their dependence on caregivers, Dr. Cole focused on customizing those key features that made them intuitive to that individual.
With significant funding from the National Institute of Neurological Disorders and Stroke’s Division of Fundamental Neuroscience, Dr. Cole proved that customizable versions of personal productivity tools applications, running on conventional personal computers, could rapidly restore activities important to brain injury patients who had plateaued from conventional cognitive rehabilitation.
From the beginning, Dr. Cole’s patient-centric approach achieved rapid recovery of function for activities prioritized by the individual. These outcomes were a technology effect: therapy participants using the technology could increase their cognitive performance. A few patients achieved apparent gains in cognitive functioning, which neuroscientists attributed to activating a neuroplasticity mechanism, in effect "rewiring” part of the brain.
In the traditional brain injury rehabilitation clinic setting, this approach was ignored, in favor of continuing to try to restore cognitive functioning. This is where patients and their families can make a choice and use a program like Neuro-Hope to effectively bridge gaps in cognitive functioning by using technology as a cognitive prosthetic and enable the patient to resume activities important to them and live their lives more fully.
Accomplishments
Dr. Cole is the author of more than 100 papers and presentations at scientific and professional meetings and research institutions in the US, Canada, United Kingdom, Europe, and Australia. He is also the author of the book, Patient-Centered Design of Cognitive Assistive Technology for Traumatic Brain Injury Telerehabilitation. He has made annual presentations at top-tier brain injury and neurology organizations, including:
The Brain Injury Association of America’s annual conference for survivors, providers, and researchers,
The Rehabilitation Engineering Society of North America (RESNA) annual workshop on advances, where Dr. Cole gave the update on Cognitive Assistive Technology,
The annual computer science conference on Human Computer Interaction,
The NIH Neurology Institute’s annual Neural Prosthesis Workshop.
The National Institutes of Health awarded several grants to Dr. Cole, including grants from the National Institute of Neurological Disorders and Stroke’s Division of Fundamental Neuroscience. Participating clinical sites included the University of Pennsylvania Medical School, Dartmouth Medical School, and Moss Rehabilitation Hospital. Dr. Cole served as an NIH Study Section member for six years; Study Sections provide the scientific peer review of research proposals. Additionally, he has also served as a proposal reviewer for the National Science Foundation, the Department of Defense, the National Institute for Disabilities and Rehabilitation Research, and the Natural Sciences and Engineering Research Council of Canada. Dr. Cole also served as a United Nations Development Programs scientific consultant to a research institute in India.
Neuro–Hope can help.
Contact us today to find out how we can help you or your loved one reach their full potential.